The parents of a six-year-old who tragically lost her life to cancer have spoken out about the heartbreaking experience of watching her die.
Demi Wilson died on September 2 in Clydach in Swansea despite battling a recurrence of cancer since March 2018, Wales Online reports .
The little girl was first diagnosed with an aggressive form of childhood cancer known as Alveolar Rhabdomyosarcoma at the age of three, but was told in August 2017 that she was all clear after she underwent a forequarter amputation and chemotherapy.
But tragically, doctors revealed in March 2018 that Demi had six new tumours which spread to her lymph nodes.
There was no cure and doctors revealed that there was “next to no chance of survival”.
Her parents, Daniel Wilson and Jodie Evans-James, said the news was hard to digest given how well Demi looked.
Mr Wilson said: “On August 12 we had the devastating news that Demi had deteriorated and her tumors had grown through treatment.
“There was nothing else that they could do.”
The six-year-old spent her last few weeks at home with her family, who tried to make things as fun as possible by playing games and watching YouTube videos on the television.
Ms Evans-James said: “Towards the end, we were all just lying on the couch. We did that for two weeks.
“It was me, her dad, her two Nannas and my dad would sit by her to make sure she was okay.
“He would do the night shift. She had all her family around her in the last couple of weeks.”
She added that before her daughter passed away, she was up and down for a couple of days.
She said: “She couldn’t manage the pain, she had an episode the night before.
“We picked her up and gave her a bath, we laid her back down and she started choking.
“The nurse saw her at 12:30 at night. She told us that its not long now until she will pass as her heart was over 160 beats a minute.
“She texted me at 9am the next day to see if everything is okay ‘yeah she is still with us’, I said.
“I had a text off Angela the nurse at 15:02 to say that the GP will be calling out this afternoon to see Demi. Then at 15:03 Demi took her last breath.”
Her parents revealed that Demi had been full of life and always had a smile on her face, particularly when she played pranks which she had loved to do.
Demi’s mum added that they had tried to ensure her daughter had nothing to worry about in her last few weeks.
Ms Evans-James said: “Demi knew she was unwell but we didn’t want her to know or have that worry. I generally don’t think that she knew what was happening.
“The first two weeks we had visitors here every other day, now its quiet. Everything was loud with her here.
“In a way you start grieving when she first had the diagnosis. I struggled a lot through that.
“I still don’t think it has hit me completely. I try to keep myself busy otherwise you just sit and think. Life was full before but now its empty.
“It’s getting harder as time goes on. You feel like you are stuck in repeat. We will all miss her more than words can say.
“For me it feels like when she would go away with her dad for a week and that week is getting longer and she isn’t coming back.
“She’s the only grandchild on both sides. An adult Christmas is nothing. Christmas was about Demi.
“There needs to be more awareness of children cancer. There have been no new drugs for children cancer in years.”
Mr Wilson said that the last few weeks have been a blue.
He said: “Because we stayed positive, she was doing well and it helped us do well if that makes sense.
“For me, the grieving process is harder now than when she passed away as we were so busy planning the funeral at the start.
“I don’t think you will ever stop grieving. Demi has touched so many hearts.
“In the short life she had she done more than children have done all their life.
“You wouldn’t wish this on your worst enemy. It’s not so much what we had to go through its what she had to go through.
“She was in so much pain and she wasn’t Demi at the end.
“You think a child with cancer is rare but its really not. If you are not in the bubble then you think its a myth, you think cancer is when you are old but its not like that at all.”
Demi would have turned seven on October 12 and to commemorate the occasion her family released balloons in her memory.
They are also collecting donations for Kids Cancer Charity who supported Demi through her journey.